Benefit Sharing: From Biodiversity to Human Genetics by Doris Schroeder, Julie Cook Lucas

By Doris Schroeder, Julie Cook Lucas

Biomedical study is more and more conducted in low- and middle-income international locations. foreign consensus has principally been completed round the value of legitimate consent and conserving learn individuals from damage. yet what are the obligations of researchers and funders to percentage the advantages of their learn with learn members and their groups? After starting up the criminal, moral and conceptual frameworks for profit sharing, this assortment analyses seven historic circumstances to spot the moral and coverage demanding situations that come up on the subject of gain sharing. a chain of innovations handle attainable methods ahead to accomplish justice for examine contributors in low- and middle-income countries.

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Extra info for Benefit Sharing: From Biodiversity to Human Genetics

Sample text

Schroeder 12 definitions have two features. First, there is an emphasis on the external element of vulnerability, namely the presence of a potential harm. Second, the potential harm is usually identified as either physical or emotional. However, in the research context, as we will see below, the definition requires either a wider understanding of harm, which includes violations of rights to well-being, autonomy and justice, or an acknowledgement of such violations in addition to harm. In research ethics, one finds a notable definition of ‘vulnerability’ in the International Ethical Guidelines for Biomedical Research Involving Human Subjects of the Council for International Organizations of Medical Science (CIOMS 2002).

Ideally one would, of course, do both. Before developing our definition further, let us point out another useful distinction: there is a difference between stating the meaning of a concept and setting out the criteria for its use. We might be clear about what vulnerability means, but still unsure about whether it applies to specific cases. The CIOMS formulation provides first a definition of ‘vulnerability’, namely a substantial inability to protect one’s interests, and goes on to list some of the criteria for using the concept.

Schroeder 14 sheet provided before giving or refusing consent. That person is vulnerable. A potential research participant who is severely intellectually disabled might face the same problem; he might not be able to understand the information provided for consent and is therefore vulnerable as well. There is an important difference between the abilities of these two potential research participants, though. The illiterate research participant might be able to learn to read and would then no longer be vulnerable, or at least not in that respect.

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